Cynulliad Cenedlaethol Cymru

National Assembly for Wales

Bil Awtistiaeth (Cymru) drafft

Draft Autism (Wales) Bill

Ffurflen Hawdd ei Darllen DAB12

Easy Read DAB12

Ymateb gan Dienw

Evidence from Anonymous

Please refer to questions in the Easy Read Response Form.

Question

Answer

01

Yes

02

Yes

03

Yes

04

Yes

05

Since autism is an emerging condition, of which understanding is incomplete, it is unreasonable to put a time-constraint on a strategy that should instead be freely flexible so as to accommodate unlimited amendments according to developing understanding

06

Again, since autism is an emerging condition, of which understanding is incomplete, it is unreasonable to put a time-constraint on a strategy that should instead be freely flexible so as to accommodate unlimited amendments according to developing understanding

07

Yes – the same answer as  in 5 and 6

08

No

09

No

10

Yes

11

A qualified Ontologist should be appointed to coordinate findings, and a health researcher with an understanding of endocrinology should also be included for consultation to consolidate findings.

12

Other things that may stop or delay a person getting needed treatment will no doubt reveal themselves as the strategy is put to use. Therefore flexibility should also characterise the proposed fairness code. In other words, cross those bridges when we get there

13

Yes   and No   because the information list will undoubtedly grow as understanding increases

14

In order to prevent the strategy from becoming top-heavy with non-essential information it should be kept to a minimum needed for identification and cataloguing purposes. What would prove useful is for a summary of each analysis to be recorded in a specific Excel-type database that can be cross-referenced by computer to trace and recognise repeating patterns that will assist the developing treatment strategy.

15

It should be written in the guidance. It should just be used to help.

16

Yes

17

It should happen all the time.

18

A Bill is only good, or useful for people as long as they need it. It may be bad for some people who are reliant upon it for whatever reason if it is inflexible.

19

Perhaps a round-table discussion could be helpful once the relevant essences of these questionnaires is distilled and coalesced into a distinguishable form. At the moment it’s more like a box of useful but uncoordinated meccano parts. I would welcome the opportunity to add more thought as the strategy process develops. As an architect, I see it now at the feasibility stage; there are many factors to be considered that will evolve and emerge as the process takes form. One of these factors could likely be a part of the school curriculum -- (the recent Donaldson Review is still open for additional input) -- that would include an understanding of these special needs as well as an investigation and study of autism-cause to complement the growing evidence of effects. Thank you, Paul, for the opportunity to comment.